Ambassadors and Patron

Ambassadors

Our Patrons and Ambassadors actively promote and support the services, activities, programs, clubs and fundraising efforts of our charity in its quest to assist individuals with disabilities and their families living with disability through the provision of support and funding.

Sunshine Butterflies Ambassadors are selected from a cross section of our Queensland community that includes business, sport, politics, health & media.

We are very honored to have a wonderful Patron, amazing Ambassadors, a growing network of dedicated and committed businesses, sponsors, supporters and of course our invaluable volunteers.

Bob Abbot - Patron

Former Sunshine Coast and Noosa Mayor Bob Abbot has been Patron of Sunshine Butterflies since it's launch in 2005.

Leanne said the support of the then mayor was one of the major reasons she “got back in the saddle” to give fresh hope and encouragement to so many families dealing with a loved one in need of special care.

 

Mayor Bob Abbot’s birthday became a major fundraising initiative for Sunshine Butterflies, when an in-house office party that saw all council staff wearing Mayor Bob’s signature clothing item: a pair of braces, caught media attention and soon grew into a Sunshine Coast community celebration to raise money for the Mayors favourite charity, Sunshine Butterflies.

The Braces Day concept 'Embracing allability– not disability' originating to celebrate the Mayors birthday quickly became a quirky idea to raise funds and awareness for those with a disability.

 

Rockability Ambassadors

Jimmy Davis

Taylor Moss

The Floating Bridges

Swim Ambassadors

Chris Fox

Kyle Richardson

Marayke Jonkers

Ryan Napoleon

Sport Ambassadors

 

Want to become a Sunshine Butterflies Ambassador

We’re currently looking for both local legends and celebrities to help spread the good word about what we do and of course when available, be a special guest during one of our art, music or sporting programs or events.

Contact Us

Fundraising Appeals

Hello, I'm Charlie Grace Harris

This is the story of our gorgeous 2 1/2 yr old daughter Charlie Grace. Charlie was born three months premature weighing only 900grams. She was brought into the world early via caesarian at The Mater Mothers Hospital in Brisbane on St Patrick’s Day 2013. Charlie had a traumatic ...

Read my story

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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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Former Sunshine Coast and Noosa Mayor Bob Abbot has been Patron of Sunshine Butterflies since it's launch in 2005.\n
\n

\n
Leanne said the support of the then mayor was one of the major reasons she “got back in the saddle” to give fresh hope and encouragement to so many families\n dealing with a loved one in need of special care.
\n

 

\n

Mayor Bob Abbot’s birthday became a major fundraising initiative for Sunshine Butterflies, when an in-house office party that saw all council staff wearing\n Mayor Bob’s signature clothing item: a pair of braces, caught media attention and soon grew into a Sunshine Coast community celebration to raise money\n for the Mayors favourite charity, Sunshine Butterflies.\n

The Braces Day concept 'Embracing allability– not disability' originating to celebrate the Mayors birthday quickly became a quirky\nidea to raise funds and awareness for those with a disability.\n
\n

 

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Donate to Sunshine Butterflies Donate Now

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ABN: 46 296 442 336 |\r\nNDIS provider registration Number: 405 000 9184

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This is the story of our gorgeous 2 1/2 yr old daughter Charlie Grace.

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Charlie was born three months premature weighing only 900grams. She was brought into the world early via caesarian at The Mater Mothers Hospital in\n Brisbane on St Patrick’s Day 2013. Charlie had a traumatic start to life. A roller coaster ride of ill health, rare complications and unfortunate\n events. During her 92 days in NICU at the Mater, Charlie suffered multiple infections, surgeries, a broken arm, four blood transfusions and other\n medical complications and challenges. At each turn Charlie defied the odds and finally was discharged home. She was in a fragile state for a long\n time at home and required a Stoma bag and 24 hour a day Oxygen. It was a constant struggle for a long time with many set backs and return visits\n to hospital. Gradually Charlie grew healthy enough to no longer require the oxygen and Stoma bag.

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Charlie’s development was significantly slower than most. It was hoped that this developmental delay was due to her rough start, however after genetic\n testing, it was revealed that Charlie had a rare Genetic condition called Mowat-Wilson Sydrome.

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Mowat-Wilson Syndrome (MWS) is so rare that there are less than 200 diagnosed cases world wide. MWS affects intellectual and Physical development.\n Many children with MWS have global developmental delays and speech is absent or severely impaired. It also can be accompanied with heart defects,\n Hirschsprungs Disease, Epilepsy, Microcephaly and other anomalies. On the flip-side, people with Mowat-Wilson Syndrome ALWAYS have a sunny disposition,\n show their affection openly to those they love and are very social. They understand more than what they are able to communicate.

\n

Despite the continual threat of seizures, physical disability, poor sleeping patterns, feeding issues and other daily battles, Charlie’s determination\n and excitement for life only grows larger and brighter. She receives ongoing treatment from Physiotherapists, speech and occupational therapists,\n nutritionists, cardiologists, neurologists and music therapy.

\n

We have set up this page to try and ease some of the financial pressures and help Charlie get everything she needs. Specialized equipment such as standing\n frames, walking devices, bathing & showering aids, special needs prams, beds, home modifications and lots of therapies (such as physio) are\n some examples. Charlie is not yet crawling, walking or sitting. We are working toward getting her to move independently. Charlie will ALWAYS require\n 24/7 care for the rest of her life. She cannot attend daycare so In-home support and respite for us is very important and positively impacts the\n quality of care that Charlie receives.

\n

One of the biggest decisions we face at present is whether to renovate our home to suit Charlie’s needs or in the near future move to a home and modify.\n We love our house, but it is not suitable for Charlie due to having stairs and various other design issues.

\n

Finally, it has to be said that we’re not really sure exactly what needs Charlie will have in the future given that her Syndrome is so rare and not\n a lot known about it. However, her greatest need of all is LOVE and she will always have plenty of that!!

\n

Charlie, at two and a half years old, continues to defy the odds. She is a very happy little girl and takes great delight in the small things. Her\n laugh is infectious and she has great sense of wonder. On meeting Charlie, one will realise how special it is to be in the presence of someone\n who has the ability to be truly joyful and display their love and affection unconditionally. In some ways she is the embodiment of what we all\n aspire to be – Happy!

\n

Thank you for your support and generosity! If you would like to follow Charlies journey please like her page on Facebook – Unite for Charlie\n

\n

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