How you can help

How you can help

“We are so grateful for each and every one of our supporters - each one has made an incredible difference, bringing new awareness and providing ongoing opportunities for individuals and families living with disability”.

Leanne Walsh CEO and Founder of Sunshine Butterflies

How you can help

Fundraising Appeals

Hello, I'm Bella Riehs

Please help Bella get a seizure alert dog and medication to help control her life-threatening seizures plus attend much needed intensive therapy. Our youngest daughter, Bella is 7 years old and is a very lively, fun loving girl. She was born with a virus called congenital ...

Read my story

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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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Donate to Sunshine Butterflies Donate Now

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ABN: 46 296 442 336 |\r\nNDIS provider registration Number: 405 000 9184

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Please help Bella get a seizure alert dog and medication to help control her life-threatening seizures plus attend much needed intensive therapy.\n
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Our youngest daughter, Bella is 7 years old and is a very lively, fun loving girl. She was born with a virus called congenital CMV which has caused\n many life long challenges for Bella including cerebral palsy, deafness with cochlear implants, oral dysphagia – non verbal and feeding problems,\n microcephaly, epilepsy etc. Despite all this she absolutely loves life and gets the most out of every day. She has a very cheeky sense of humour\n and is very determined.\n
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Bella has life-threatening (tonic/clonic) seizures and these seizures require emergency medication to help bring her out of the seizure. Each time\n she has a seizure it can take her about a hour to regain consciousness and then she is usually exhausted and vomiting for most of the day. It takes\n an enormous toll on her body. This also takes a huge toll on the rest of the family including siblings Jarrad (13) & Thalia (10) who assist\n with caring for her.\n
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Over the last several years we have tried numerous medications trying to control Bella’s seizures, a keto diet, natural remedies and whilst these\n help, Bella still experiences multiple seizures. We have now been approved by the government to give Bella special medication which is proving\n to be very effective in reducing Bella’s seizures but this isn’t on the PBS so it is costing us $1000 per month to access this life saving medication\n for Bella. This medication reduces Bella seizures down to maybe once a month instead of multiple seizures a day.\n
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Bella is also growing up and wanting to be more independent, we are constantly worried she will have a seizure and she can’t be left alone even just\n to play in her room or eat at the table. She has a seizure alert alarm watching her all night and if the power goes out or we are travelling she\n needs to sleep with us so we can keep a very close eye on her. If she has a seizure when alone this can be very dangerous – even fatal.\n
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A seizure alert dog would allow Bella to maintain some independence and give us peace of mind that she would be safe in the event of a seizure. These\n seizure alert dogs are trained to alert and even help care for and protect Bella during a seizure by rolling her onto her side. They go through\n extensive training and are trained to detect an oncoming seizure ahead of time allowing us to get Bella into a safe position before the seizure\n occurs. As she is getting older she is getting heavier so it is vital we get her into a safe position during a seizure. Given the extensive training\n over 18months the dogs must undertake they are very expensive costing $45,000.\n
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Given Bella’s challenges she also needs intensive therapy and a lot of specialised equipment, we have had great success with MNRI therapy. MNRI is\n an innovative technique that uses Neurosensorimotor Reflex Integration to reprogram the brain. Bella has been making great progress thanks to MNRI\n and it has drastically altered the course of her life and development for the better. This therapy is changing Bella’s life and future. We have\n seen significantly improvements in many areas especially her walking, ability to use her hands, especially to do sign language to enable her to\n communicate, improving her ability to eat which is very challenging with Bella, she is even attempting some basic words. This therapy covers occupation\n therapy, physiotherapy, speech therapy and even aqua therapy.\n
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We would be so grateful for your financial support to enable us to continue this life saving medication and add a seizure alert dog to our family,\n plus allow Bella to continue her much needed intensive therapy!\n
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If you are unable to donate that’s ok too. Please send us your love, healing thoughts, positive vibes and prayers.\n
We are also organising a fundraising event to help raise these funds so if anyone would like to help please let me know.
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