NDIS

NDIS

NDIS Provider ~ Sunshine Coast

Sunshine Butterflies - your local Registered NDIS Provider on the Sunshine Coast

The National Disability Insurance Scheme is the new way of providing individualised support for eligible people with permanent and significant disability, their families and carers. The NDIS is the insurance that gives us all peace of mind. Disability could affect anyone - having the right support makes a big difference.

The NDIS will be fully implemented in Queensland by 1 July 2019 with around 97,000 Queenslanders eligible to receive support through the scheme. Here at Sunshine Butterflies, we are a registered NDIS provider on the Sunshine Coast.

Under the NDIS, people with a disability will have choice and control over their disability supports, including choosing who and how these supports are provided and managed. People who meet eligibility criteria will be able to access all reasonable and necessary disability supports, as agreed in their individual plans to live independently in the community and to work towards achieving their goals and aspirations over their lifetime.

Please visit ndis.gov.au to download brochures and booklets, fact sheets and general guides on how to prepare and plan your future. There will also be up to date information about the scheme, plus information on providers who are registered to deliver supports or products in alignment with your plan enabling you to reach your goals of what a good life looks like for you.

Alternatively, feel free to contact us and let us step you through the process. Our experienced staff have been navigating the NDIS system now for several years, and are experts in the field and can help you to navigate the scheme to maximise your results.

We will be holding a number of FREE NDIS Information Sessions.
Please contact us on 07 5470 2830 if you are interested in attending one of these sessions.

We are registered NDIS provider for the following Disability Support Services:

  • Assist Personal Activities
  • Household Tasks
  • Group/Centre Activities
  • Personal Activities High
  • Daily Tasks/Shared Living
  • Support Coordination
  • Assist Travel/Transport
  • Early Childhood Supports
  • Exercise, Physical & Personal Training
  • Therapeutic Supports
  • Participate Community
  • Behaviour Support
  • Innovation & Community Participation
  • Plan Management
  • Assist Life-Stage Transition
  • Development & Life Skills

 

Fundraising Appeals

Hello, I'm Charlie Grace Harris

This is the story of our gorgeous 2 1/2 yr old daughter Charlie Grace. Charlie was born three months premature weighing only 900grams. She was brought into the world early via caesarian at The Mater Mothers Hospital in Brisbane on St Patrick’s Day 2013. Charlie had a traumatic ...

Read my story

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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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Donate to Sunshine Butterflies Donate Now

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ABN: 46 296 442 336 |\r\nNDIS provider registration Number: 405 000 9184

\r\n\r\n\r\n\t\t\t\t\t\t© { {globals.site.dateNow | date: \"yyyy\"}} Sunshine Butterflies | Privacy

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", "params": { "name": "Template - Footer" }, "webapps_2": { "moduleName": "webapps", "moduleDescriptor": { "templatePath": "/Layouts/WebApps/Personal Fundraising - Members/list.html", "parameters": "render=\"item\",id=\"35707\",filter=\"random\"", "apiEndpoint": "/api/v3/webapps", "objectType": 34, "objectId": -1, "adminUrl": "/Admin/CustomContent_ItemList.aspx?CustomContentID=-1" }, "editableFieldTypes": { "description": "Html", "itemId": "Id", "name": "Text", "url": "Text", "releaseDate": "Date", "expiryDate": "Date", "lastUpdateDate": "Date", "weight": "Number" }, "items": [ { "description": "

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This is the story of our gorgeous 2 1/2 yr old daughter Charlie Grace.

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Charlie was born three months premature weighing only 900grams. She was brought into the world early via caesarian at The Mater Mothers Hospital in\n Brisbane on St Patrick’s Day 2013. Charlie had a traumatic start to life. A roller coaster ride of ill health, rare complications and unfortunate\n events. During her 92 days in NICU at the Mater, Charlie suffered multiple infections, surgeries, a broken arm, four blood transfusions and other\n medical complications and challenges. At each turn Charlie defied the odds and finally was discharged home. She was in a fragile state for a long\n time at home and required a Stoma bag and 24 hour a day Oxygen. It was a constant struggle for a long time with many set backs and return visits\n to hospital. Gradually Charlie grew healthy enough to no longer require the oxygen and Stoma bag.

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Charlie’s development was significantly slower than most. It was hoped that this developmental delay was due to her rough start, however after genetic\n testing, it was revealed that Charlie had a rare Genetic condition called Mowat-Wilson Sydrome.

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Mowat-Wilson Syndrome (MWS) is so rare that there are less than 200 diagnosed cases world wide. MWS affects intellectual and Physical development.\n Many children with MWS have global developmental delays and speech is absent or severely impaired. It also can be accompanied with heart defects,\n Hirschsprungs Disease, Epilepsy, Microcephaly and other anomalies. On the flip-side, people with Mowat-Wilson Syndrome ALWAYS have a sunny disposition,\n show their affection openly to those they love and are very social. They understand more than what they are able to communicate.

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Despite the continual threat of seizures, physical disability, poor sleeping patterns, feeding issues and other daily battles, Charlie’s determination\n and excitement for life only grows larger and brighter. She receives ongoing treatment from Physiotherapists, speech and occupational therapists,\n nutritionists, cardiologists, neurologists and music therapy.

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We have set up this page to try and ease some of the financial pressures and help Charlie get everything she needs. Specialized equipment such as standing\n frames, walking devices, bathing & showering aids, special needs prams, beds, home modifications and lots of therapies (such as physio) are\n some examples. Charlie is not yet crawling, walking or sitting. We are working toward getting her to move independently. Charlie will ALWAYS require\n 24/7 care for the rest of her life. She cannot attend daycare so In-home support and respite for us is very important and positively impacts the\n quality of care that Charlie receives.

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One of the biggest decisions we face at present is whether to renovate our home to suit Charlie’s needs or in the near future move to a home and modify.\n We love our house, but it is not suitable for Charlie due to having stairs and various other design issues.

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Finally, it has to be said that we’re not really sure exactly what needs Charlie will have in the future given that her Syndrome is so rare and not\n a lot known about it. However, her greatest need of all is LOVE and she will always have plenty of that!!

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Charlie, at two and a half years old, continues to defy the odds. She is a very happy little girl and takes great delight in the small things. Her\n laugh is infectious and she has great sense of wonder. On meeting Charlie, one will realise how special it is to be in the presence of someone\n who has the ability to be truly joyful and display their love and affection unconditionally. In some ways she is the embodiment of what we all\n aspire to be – Happy!

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Thank you for your support and generosity! If you would like to follow Charlies journey please like her page on Facebook – Unite for Charlie\n

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