Our beautiful girl is 6 ½ years old, she is the happiest kid you will ever meet. Chelsea loves being outdoors, swinging, riding for the disabled, having books read to her and her favourite TV show is The Wiggles. Chelsea was diagnosed when she was 13 weeks old, just a baby. She has Aicardi Syndrome, mild Cerebral Palsy, she is non-verbal and suffers with Epilepsy.
She has been classified as disabled and takes several anticonvulsant medications to control her seizures and is developmentally delayed. Aicardi Syndrome is an extremely rare genetic disorder with virtually no support groups specifically aimed at Aicardi Syndrome in Australia. Many Aicardi girl’s do not walk or talk, are mentally challenged and require a full time carer. The severity of the Syndrome can vary so we are just hoping for the best and staying positive for Chelsea.
It has been a long journey and a very bumpy road, it is never easy and quiet expensive raising a child with such complex needs. Chelsea requires a lot of care, specialist appointments and one on one therapy time. Visiting the Neurologist, Physiotherapy, OT, Speech therapy session, GP, plus school - Chelsea is one busy kid!
Chelsea has recently learnt to walk with assistance in a frame, this is a huge milestone for her and a very long time coming. Persistence and perseverance has paid off and we are very proud of her. Although Chelsea will never talk, she shows emotions and understands most things you say to her, we are working on answering questions with Yes and No flash cards and use a POD communication book and switches.She is learning new skills to communicate with her friends and teachers at school, family and carers.
Just going to all these doctors and therapist appointments is an expensive necessity. Plus the extra expenses of medications, respite, travel costs, nappies, AFO and SMO’s, specialised mobility aides, sensory toys, the bills add up to over $14,500 per year!
We love Chelsea dearly and wish for her to be happy, healthy and able to live life to the fullest. Your support and generous donations are so greatly appreciated and will make a world of difference to the livelihood of our beautiful little girl Chelsea.
Our most sincere heart felt thank you for your donations to help our precious little girl who deserves to live life to the fullest.
Thanks, Melissa & Trent (Mum & Dad of Chelsea) email@example.com
**To follow Chelsea’s progress and follow her journey visit her Facebook page ‘Chance for Chelsea’ or website www.chanceforchelsea.com
To Donate to Chelsea Hammel, please use the form below. Thank you for your generosity.
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