Finlay Mair

 

Hi, I'm Finlay Mair

 

Hi my name if Finlay and I’m 9 years old.

I was diagnosed with a genetic condition called Spinal Muscular Atrophy, commonly known as SMA when I was 18 months old. SMA is a rare inherited disease resulting in the loss of nerves in the spinal cord and weakness of the muscles connected with those nerves.
The muscles most frequently affected are those of the neck and trunk that control posture, those of the leg and arm that control movement and those of the area of the ribs that help breathing.
There is no known cure for SMA and 1 in 35 people carry the gene.
I was fortunate enough to be classified as a type 3 due to being able to walk, however I have since lost my mobility and require the use of my wheelchair to get around.
I will never run or ride a bike like most children however I love to swim and the freedom that swimming gives me. My mum and dads aim is to keep me as mobile as possible.
My parents hope to raise money to assist us in funding a Therapy Pool and Hoist. Having a heated therapy pool will allow me to keep the muscles moving and to help maintain the little core strength I have left.
Mum and Dad say they are blessed to have such a happy boy and I am here to teach people that they should be grateful for the life they lead and never take it for granted. My family and I thank you for taking the time to read my story. Your support and generous donations will go a long way to helping me live my life to the fullest.
Big hugs and kisses from Finlay xo
If you would like to know more about my condition please contact my mum and dad (Lyndsey & Graeme) at cav_78@hotmail.com


 

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