Hi my name if Finlay and I’m 2 ½ years old. I was diagnosed with a genetic condition called Spinal Muscular Atrophy, commonly known as SMA when I was 18 months old. SMA is a rare inherited disease resulting in the loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. The muscles most frequently affected are those of the neck and trunk that control posture, those of the leg and arm that control movement and those of the area of the ribs that help breathing. There is no known treatment for SMA and 1 in 35 people carry the gene.
I was fortunate enough to be classified as a type3, where I have limited mobility. I fall down frequently, I struggle to get up without help, I will never run and will struggle to ride a bike like most children. My mummy and daddy’s aim is to keep me as mobile as possible, however SMA is a degenerative neuromuscular disease and I will need the aid of a wheelchair for Kindy & School. I have daily physio and weekly swimming lessons to keep the muscles moving and to help maintain the little core strength I have left. When at home I have Dobbie my dog to keep me active and I love spending as much time as possible outside helping daddy in the garden or with mummy at the play park. I am a happy and cheeky boy which my mummy will testify to, and I don’t like it when I can’t keep up with other kids.
My parents hope to raise money to assist us in funding a Permobile wheelchair for me and a modified vehicle to help us get around. Having access to this equipment will allow me to keep up with my peers in the playground and to access my home environment independently. This will benefit me both physically and emotionally as I will be able to conserve energy to develop age appropriate skills.
Mummy and Daddy say they are blessed to have such a happy boy and I am here to teach people that they should be grateful for the life they lead and never take it for granted. My family and I thank you for taking the time to read my story. Your support and generous donations will go a long way to helping me live my life to the fullest. Big hugs and kisses from Finlay xo
If you would like to know more about my condition please contact my mummy and daddy (Lyndsey & Graeme) at email@example.com
To Donate to Finlay Mair, please use the form below. Thank you for your generosity.
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