Our gorgeous Ivy was born at 30weeks gestation and when she was just 14 days old we were told she would have Cerebral Palsy. She is now 7 and 3/4 and still gorgeous and as bubbly as ever! Ivy is a bright and sassy girl, keeping up with her peers in Year Two at mainstream school. She enjoys dance, horse-riding, drama and swimming after school.
Throughout her life, Ivy has faced many challenges and together we have worked through countless hours of therapy. While therapy has been successful in increasing her strength and coordination, as she continues to grow, we were struggling to fight against the spasticity in her body caused by Cerebral Palsy. Wonderfully, Ivy was accepted for a pair of surgeries in the USA. The first a spinal nerve surgery that permanently removed all spasticity from her lower body - Selective Dorsal Rhizotomy (SDR). The second a muscle lengthening surgery that returned her leg muscles to the length they should be - Percutaneous Muscle Lengthening (Percs).
These surgeries were successfully performed in November 2018. This will allow her to grow without deforming her bones, reduce pain, reduce the need for multiple surgeries on her bones and increase her mobility. With ongoing therapy afterwards to build her strength in her new body, she will most likely be able to transfer herself independently between her various pieces of mobility equipment giving her dignity and control, particularly around bathing, getting in and out of bed and going to the bathroom. This would allow her to live independently as an adult.
Post operatively her therapy schedule requires up to two hours of therapy a day. Every day of the week. This is a lot for a young girl but she has taken to the challenge with determination. 2019 will also see her participate in Horse Riding, Ballet & Swimming for therapy as well as specifically targeted intensive therapy sessions of 60 hrs each three times a year. This year we also hope to get her a special needs tricycle which is a particularly good therapy post this surgery.
We have been so fortunate to receive support we have last year to get this far. Ivy's therapy costs this year we estimate to be in excess of $40 000. Tricycles that will suit her are usually $2000 or more. We are grateful that NDIS will cover some though not all of these costs.
Your support and generosity will make a huge difference to Ivy and our family and we thank you from the bottom of our hearts for your kindness! Ivy has great potential to achieve, contribute and lead in this world, she will inspire others just as she has inspired us.
Thank you so much 💕
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