Olivia Blake


Hi, I'm Olivia Blake

Meet Olivia, our bubbly, happy 16 year old daughter. Olivia has had a very challenging life however it certainly doesn't stop her from smiling! She absolutely loves animals and being around others. She is simply a beautiful and brave soul and makes a difference to those she meets. 

Olivia has multiple diagnoses, 16 to be precise; Chromosome 17q21.31 deletion (Koolen De Vries Syndrome), Recurrent severe chest pain, Neurosymptoms/Seizure Disorder, Recurrent patellar dislocation and joint hyper-mobility, Osgood-Schlatter disease, Global Development Delay/Learning difficulties, Hearing loss, Bilateral temporal visual field reduction, Bladder difficulties, Constipation, Dental abnormalities, History of Craniosynostosis, Mild scoliosis, Parasomnias, Multiple Food Allergies and Intolerances, Swallowing difficulties/Dysphagia. 

Olivia‚Äôs life is difficult and each day is a challenge for herself and our family.  With so many needs, it comes at quite a high cost which has put financial pressure on our everyday living. For this reason, we have put together a fundraising page to hopefully ease some of that pressure. Any donations made to Olivia will go directly to support her needs which include a specialised medical padded bed, specialised equipment and aids along with their associated costs, therapies, and her numerous daily medications. 

Your donation is so greatly appreciated by our family and will make such a difference to our lives. Thank you so much for your kindness and support!

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