Privacy

This Privacy Policy sets out our commitment to protecting the privacy of your personal information that we collect through this website www.sunshinebutterflies.com.au (Site) or directly from you. 

Please read this Privacy Policy carefully.  Please contact us if you have any questions. 

 

You providing us with personal information indicates that you have had sufficient opportunity to access this Privacy Policy and that you have read and accepted it.  

If you do not wish to provide personal information to us, then you do not have to do so, however it may affect your use of this Site or any products and services offered on it.

1. Type of personal information collected

Personal Information: The type of personal information we collect may include is set out on our website.

If we receive your personal information from third parties, we will protect it as set out in this Privacy Policy.

2. Collection and use of personal information

We collect and use the personal information for purposes including to contact and communicate with you, for internal record keeping and for marketing.

3. Disclosure of personal information

We may disclose personal information for purposes including to provide our products and services to you, and as required by law. Where we disclose your personal information to third parties for these purposes, we will request that the third party follow this Privacy Policy regarding handling of your personal information.

4. Access to and correction of personal information

Access: You may request details of personal information that we hold about you, in certain circumstances set out in the Privacy Act 1988 (Cth).  An administrative fee may be payable for the provision of information.  We may refuse to provide you with information that we hold about you, in certain circumstances set out in the Privacy Act.

Correction: If you believe that any information we hold on you is inaccurate, out of date, incomplete, irrelevant or misleading, please contact us by email. We rely in part upon customers advising us when their personal information changes.  We will respond to any request within a reasonable time.  We will endeavor to promptly correct any information found to be inaccurate, incomplete or out of date.

5. Complaints about breach

If you believe that we have breached the Australian Privacy Principles and wish to make a complaint about that breach, please contact us on the email address below.

Fundraising Appeals

Hello, I'm Cooper Greig

I’ve never understood why some of life’s biggest battles were given to the smallest of children. That was until I met my son, our first child, 17 months ago. Who knew such a tiny creature could have the heart of Phar Lap, the courage of a lion, and the bravery, resilience, and fight...

Read my story

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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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Donate to Sunshine Butterflies Donate Now

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ABN: 46 296 442 336 | \r\nNDIS provider registration Number: 405 000 9184

\r\n\t\t\t\t\t\t\r\n\t\t\t\t\t\t\r\n\t\t\t\t\t\t© { {globals.site.dateNow | date: \"yyyy\"}} Sunshine Butterflies | Privacy

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\n

I’ve never understood why some of life’s biggest battles were given to the smallest of children. That was until I met my son, our first child, 17 months\n ago. Who knew such a tiny creature could have the heart of Phar Lap, the courage of a lion, and the bravery, resilience, and fight, of a full grown\n man. This page has been set up to Help Cooper Eat, because sometimes even superheroes need a helping hand. Our boy Cooper, has already endured\n more in his short time on Earth, than most would in a lifetime. Here’s his story…

\n

Cooper suffered very serious birth complications, which resulted in our baby boy being born lifeless. He went into cardiac arrest after becoming stuck\n during delivery, and required life- saving medical intervention for the first two weeks of life. We spent a month in hospital, and his ill health\n and associated risks of attempting to feed, prevented him from developing and establishing the early feeding skills infants instinctively use in\n their first weeks of life. From day one, until 13 months of age, he was fed all nutrition through a Naso- Gastric Tube (tube inserted through his\n nose, and into the stomach), which came with an enormous amount of responsibility, problems, and ongoing trauma for Cooper. From very early on\n he had been defensive and frightened of anything that resembled, and reminded him of, the intrusive medical intervention he received in hospital.\n A bottle, spoon, sippy cup, teething toys etc, were all seen as threatening through his eyes. This aversion to eating and drinking left our 13\n month old son with an escalating dislike of food, and meal times in general, as well as significant developmental delays, problems with weight\n gain, limited and unco-ordinated oral motor skills, serious bouts of gagging, choking and vomiting, and every two weeks we took him back to hospital\n to have his tube replaced. This experience was always very traumatic to say the least, and set us back once again on our difficult journey to help\n Cooper eat.

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For Cooper to progress to eating and drinking like his peers, he required intense daily therapy in a safe and familiar environment, and a tailored\n tube weaning plan from experts in this specialised field. Unfortunately Australia has limited expertise in this field. In May last year, we embarked\n upon a huge four months of fundraising to bring an expert in this specialised field- Dr Markus Wilken, to Australia from Germany. Markus is a Clinical\n Developmental Psychologist (Owner and Director of the Institute of Paediatric Tube Management and Weaning), and he was able to single- handedly\n provide the tube weaning treatment Cooper desperately needed, which was not available to him in this country. This rapid tube wean was not easy,\n it was an incredibly exhausting and stressful two weeks for all involved, however at the end of this time, we made some amazing discoveries, and\n incredible progress, that we never had a hope of achieving without Markus by our side. We were thrilled to find that Cooper could eat and drink,\n and do both quite well, considering he had never done either in his life. He could also do both safely. Markus gave us the skills, tools, confidence,\n and knowledge, to help our son become an eater, and he gave him the gift of a more independent and normal life.

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At the end of the wean, unfortunately the feeding tube was still in place. Cooper was eating, and eating well, however he wasn’t drinking enough fluid\n to stay hydrated and thrive. We made the difficult decision in October to have a PEG (percutaneous endoscopic gastronomy) feeding tube placed in\n his abdomen, so the naso- gastric tube could be removed. Within twenty four hours of the new feeding tubes placement, Cooper became gravely ill,\n and we found ourselves running beside his cot on the way to theatre, signing consent forms, so our son could have emergency washout surgery. Surgery\n that would save his life. He had suffered secondary peritonitis, as the PEG leaked, and within hours of developing this condition, an incredible\n infection spread throughout his entire abdominal cavity. Cooper was taken into theatre, and we were given no indication of what the outcome would\n be, it was terrifying. How could we nearly lose our son again??! Cooper spent a month in the PICU fighting for his life, and our brave little soldier\n survived. For the next month and a half we battled a gaping hole in his abdomen, which was too big for any Mic-Key button (during the washout surgery,\n the PEG and it’s backing were ripped through his abdomen wall, essentially tearing it apart, as a PEG should not be touched for three months. The\n PEG was then replaced with a Mic- Key button, which is a low profile, much smaller feeding tube) they had, and Cooper had to then endure VAC (vacuum\n assisted closure) dressings which gave him third degree burns, silver dressings, poking, prodding, being fed by NJ (Naso- Jujenal) tube into his\n intestine…. We found ourselves in a worse situation than before we started all of this, with a little boy who had become terrified and defensive\n of everyone again, was completely battered and bruised, and who was not allowed to eat or drink anything orally for this whole length of time in\n hospital. Prior to September we had a boy who refused to eat orally, no matter how much we tried to encourage it, and now we had a boy who was\n now desperate to eat, but we had to refuse him, as his stomach was so damaged from the surgeries, it was leaking uncontrollably, so it couldn’t\n be used.

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Fast forward till now, and the last three months have had a damaging effect on Cooper’s eating and drinking. Every spoonful or sip is quite an ordeal,\n we have an unpredictable and unreliable feeding tube, Cooper has lost weight again, he is also very confused and angry about all that has happened…\n Understandably. He has taken an emotional and psychological battering, as have we all, and we now need the assistance of Dr Wilken again, to combat\n Cooper’s feeding issues once and for all. This time though, we will need to bring in the big guns!

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Markus has a speech and language pathologist that travels the world with him, to assist in the most intensive and tricky weans. Cue Stephan Echtermeyer,\n an experienced speech therapist (owner and director of Sprachpuzzle), the hands- on master, who specialises in tube weaning and Castillo Morales\n Therapy.

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How Can You Help?\n

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With your generous support and donation, you can provide Cooper with the opportunity to combat his psychological fear and anxiety towards eating and\n drinking once and for all. The money raised will be used to bring two experts in this specialised field- Dr Markus Wilken, and Dr Stephan Echtermeyer,\n to Australia from Germany. Markus and Stephen will be able to provide the life- saving, consistent and intensive tube weaning, and psychological\n treatment, Cooper desperately needs to get back on track, and look towards a tube free future. You will give our son the gift of a more comfortable,\n safe, independent and normal life, with substantially less doctor, specialist and hospital visits.

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For a detailed account of Cooper’s birth, the Rapid Feeding Tube Wean in September with Dr Wilken, and our previous two months in hospital after the\n PEG surgery, please visit www.facebook.com/helpcoopereat\n

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Thank You!

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