Specialists did not expected Samuel to live past 2 days, but he has fought extremely hard, and has come so far. He spent a total of 5 weeks in the neonatal intensive care unit at Nepean Hospital.
In this time Samuel undertook many scans and specialist appointments.
His conditions prevent the normal development of motor functions.
This type of cerebral palsy often makes simple task a lot more challenging which includes walking, siting up or picking up small objects. He is also at risk of co existing conditions that can lead to attention deficit hyperactivity disorder (ADHD), or behavioural disorders from where the brain damage is located.
Unfortunately for Samuel his CP affects all four limbs, as well as his torso and face and is currently in the process of having to be fed threw a tube because of his diagnoses.
Throughout Samuel’s life, he has faced many challenges and together we have worked through countless hours of therapy to assist him in achieving as many milestones as he possibly can.
We have assisted Samuel physically, mentally, emotionally and financially as much as we can from day one and will continue to for the rest of our lives. It is sometimes the financial assistance that we have difficulty with. We appreciate the assistance we get from the NDIS, but this does not cover all of Samuel’s ever-increasing needs.
Samuel has many medical appointments each week that we have transport him to. We want to ensure that Samuel remains social with our family and friends who bring so much happiness to his life.
He is now starting to get too heavy to lift in and out of the car, especially due to his muscle tone.
We must bend him in so many ways as he cannot control his body movements when he is stiff and upset (dystonia). We fear he is getting injured each time we transfer him in and out of the car.
To be able to transfer Samuel safely without him being upset or injured, we need a modified vehicle that could accommodate his wheelchair so that he could remain in it whilst entering and exiting the vehicle.
This will become even more crucial, as Samuel grows older and heavier.
We are trying to raise enough money to purchase the supporting travelling needs and to assist in him being independent.
The funds will also be for any other conversions or equipment for Samuel’s needs. It would mean the world to us for our little boy Samuel to be independent and comfortable throughout his life.
We thank and appreciate all your support for us and Samuel.