Who we are

Who we are

Sunshine Butterflies is a boutique, not- for-profit provider that has built a network of flexible services to provide information, support, resources and programs to individuals and families living with a disability in a safe and happy learning environment.

Sunshine Butterflies was founded in 2005 by Leanne Walsh, who made it her mission to reduce the stigma of disability within her community and she now leads a small and passionate team to help make this dream a reality.

Leanne’s enthusiasm and dedication towards disability education, awareness and inclusion began together with her husband Damien when their son Curtis was born 13 weeks premature with Cerebral Palsy. It is from her own journey and experiences that led Leanne to develop and create a charity and service that specialise in supporting families and individuals, as well as educating the younger generation about disability, acceptance and inclusion.

Sunshine Butterflies provide families with parent support, information and individual assistance, swim, social and recreational opportunities, early intervention programs, post school recreational programs, respite and personal fundraising plans.

Those who use our services are families, individuals, carers, service providers, NGO’s, medical personnel, schools and community groups, all for different reasons.

Sunshine Butterflies programs, activities and support services are for the whole family and are delivered from our new location 'Our Backyard' a 5 acre hobby farm...

We cannot wait for you to come and see our new home!

Leanne Walsh, Founder

 

Who We Are

Fundraising Appeals

Hello, I'm Abby Davis

Hi my name is Abby and I am a beautiful cheeky 3 year old but underneath my smile I hide a lot of pain. For the past 2 1/2 years I have been suffering with early onset Systemic Juvenile Rheumatoid Arthritis also known as Still’s disease. It is a rare type of arthritis and it affects all of m...

Read my story

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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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Donate to Sunshine Butterflies Donate Now

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ABN: 46 296 442 336 | \r\nNDIS provider registration Number: 405 000 9184

\r\n\t\t\t\t\t\t\r\n\t\t\t\t\t\t\r\n\t\t\t\t\t\t© { {globals.site.dateNow | date: \"yyyy\"}} Sunshine Butterflies | Privacy

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", "params": { "name": "Template - Footer" }, "webapps_2": { "moduleName": "webapps", "moduleDescriptor": { "templatePath": "/Layouts/WebApps/Personal Fundraising - Members/list.html", "parameters": "render=\"item\",id=\"35707\",filter=\"random\"", "apiEndpoint": "/api/v3/webapps", "objectType": 34, "objectId": -1, "adminUrl": "/Admin/CustomContent_ItemList.aspx?CustomContentID=-1" }, "editableFieldTypes": { "description": "Html", "itemId": "Id", "name": "Text", "url": "Text", "releaseDate": "Date", "expiryDate": "Date", "lastUpdateDate": "Date", "weight": "Number" }, "items": [ { "description": "

Hi my name is Abby and I am a beautiful cheeky 3 year old but underneath my smile I hide a lot of pain. For the past 2 1/2 years I have been suffering\n with early onset Systemic Juvenile Rheumatoid Arthritis also known as Still’s disease. It is a rare type of arthritis and it affects all of my joints\n as well as my internal organs and lymp-hnodes.

\n

I woke up when I was 10months old with a sore knee and within 2 weeks could no longer move my limbs or be touched as it hurt all over. I was in and\n out of hospital for 6 weeks before they diagnosed me. I suffer daily from swollen and stiff joints as well as rashes, high fevers, red face and nasty\n side effects from my medication. I have to avoid direct sunlight as the steroids and chemotherapy tablets I am on make my skin prone to burning to\n the point of melting, the medicine also makes me bloat and it is very strong. I have a very weak immune system as arthritis is an autoimmune disease\n as well as my medications being immune suppressants, so I get sick a lot and I have to be very cautious when we are out not to share anything with\n other people and to avoid anyone who might be sick as my body doesn’t have the ability to fight the germs. I have been hospitalized 4 times this year\n from complications due to normal childhood illness, most recently I was hospitalized due to a common flu which turned to systemic infection causing\n me to have convulsions and hallucinations with severe temperatures.

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My family and I had to move from the coast to Sydney so I could be close to the wonderful doctors and constant treatment but we have since moved back to\n south west rocks as living in Sydney seem to make my health worse and the Dr said it was due to overpopulation and high germ factor. As well as my\n daily medication I have steroid injections every 4 months to all my joints via day surgery to help me get movement and some comfort, I try and be brave\n but its scary!! Its also hard on my family seeing me so sick and scared as well as being very costly as the government doesn’t fund juvenile arthritis\n and Centrelink said they don’t recognize my disease yet, it costs my mummy and daddy around $1000 a month for all my treatments and medications.\n I also have to have fortnightly blood tests which is a battle as I don’t like it and my arms are scarred from having so many needles making it\n hard for the nurses to access my veins the only thing i like is the wiggles band-aid at the end. I have to have my eyes checked with the ophthalmologist\n every 8 weeks to make sure my eyesight isn’t diminishing which is a common occurrence linked to arthritis which recently has been giving me problems\n with vision in my left eye making it hard for me to see.

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The doctors can’t give me a future prognosis and there is no cure we just have to take day by day and hope the pain isn’t so bad. We appreciate all your\n support and kind donations which go towards the costs of my medical treatments and the travel expenses to and from the hospital in Sydney.

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Abby xx

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